Another Surgery
"O God, the strength of the weak and the comfort of sufferers: Mercifully
accept our prayers, and grant to your servant Jeanie the help of your
power, that her sickness may be turned into health, and our sorrow into
joy; through Jesus Christ our Lord. Amen" (Evening Prayer, March
29, St. James Cathedral)
April 1, Feast of Fools, 2000
Jeanie Wylie had emergency surgery last night. Her
brain was filled with fluid pressure, hydrocephalus - water on the brain.
My older brother died of it at two weeks old. She woke up this morning
with a shunt draining the excess into her belly and a smile wide as her
eyes are bright.
Since the several days of intensive work last month when she put
final touches to a discipleship issue of The Witness (with major
backside editorial coverage from the staff) I have watched her decline
and slow. Progressively nonverbal. At the neurologists office Monday she
couldn't add 9+3, draw the face of a clock, say the day or date, or even
where we were - try hard as she might. When my bishop asked us to serve
communion at a Methodist gathering Tuesday, she offered the cup with a
grace not wordless, but silent. At an Associated Church Press worship
service on her behalf in Chicago last week and at the Episcopal
Communicators' luncheon (where Lydia and Lucy handed out the awards with
a grace all their own) she would tire quickly, fail to recognize friends,
lapse into a stare, or merely nod and smile in earnest attempts at conversation.
These weeks have been full of grief for me. I hadn't stopped working
or doing the tasks of our life together, I just did them with tears streaming
down or cracks in my voice. Dishes and driving, faxing and phone calls.
Lydia took it as the first time I had "given up" (and set her
hand to encouraging and caring for me). But in truth, not so. It never
seemed to me resignation or despair, simply the cleanest and most open
response to what was slipping away before my eyes. A yearning for the
absent. And the ceaseless prayer which love is.
We returned early from Chicago as Jeanie was requiring constant
assistance for the most basic of functions. I'd found myself necessarily
holding her fork or toilet paper or shoelace, albeit as loving intercession
mingling frustration and grief. We went the next morning, Friday, to the
hospital for pictures and tests. In the car on the way she didn't talk,
but she was able to sing with me.
The surgery decision was urgently simple and well advised. She looked
me in the eye and nodded as I signed consent. (To forego it or delay would
have meant quickly blindness, then stroke, then respiratory failure).
And yet it betokened and presaged other decisions which one day might
forego "heroic measures" and technological false hopes. She
made her living will long ago. At the very least, true hope includes not
dreading such choices prematurely.
Opening the ACP/EC worship service at the cathedral in Chicago,
our friend Herb said, "It is not death which Jeanie Wylie resists,
but the power of death. Her wisdom is to show us the difference."
She sure ly does show me.
At the conference (and at the Methodist meeting) people introduced
themselves who had previously known Jeanie only in prayer. What an amazing
way to meet. In the company of the wide communion of all who have ever
prayed and all who will. Thanks for being in that
communion.
Til every tear is wiped away,
Bill
Sunday morning postscript (4/2): Jeanie, while still a li
ttle disoriented and agitated, is talking a mile a minute. Completing
her sentences. By afternoon she should be out of ICU and into a regular
room. Home, if things proceed as hoped, in a day or two.
April 3,
2000
Yet another call to prayer.
Our Jeanie is still in the ICU. As they were preparing her for
the room transfer, she had a brief seizure while on the commode
unattended, and took a nose dive. It's clear setback and she is
recovering way more slowly than my heart yearns. I like this hospital,
its human scale, and the doctors for whom we choose it, but at the
moment my grief renewed is mixed with anger.
The seizure could have been caused by any number of things:
aftermath of surgery, the shunt itself, or an anti-seizure medication
change just then in transition. A CAT scan last night shows nothing
untoward. Her eyes open and her smile follows, but she talks little an
d
then barely. The neurologist is hunting clues and saying that time is
what she needs. The fruitfulness of time and prayer are equal mysterie
s
to me (and notably related). God grant her both.